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Online Privacy Policy

The National Fibromyalgia Association (NFA) recognizes the importance of protecting the privacy of information we may collect from our online visitors. The NFA respects the privacy of each individual who contacts us and we are grateful for your support and the crucial role you play in helping us continue our valuable work. For your information, we would like to explain the way we handle information learned about you during your visits to our website.

Collection and use of information

We collect two kinds of information: site usage data, which is not individually identifiable, and individually identifiable information.

Site usage data: Our web server automatically recognizes and collects the domain name of each visitor to our website. We log the number of visitors, the pages they access, and the length of their visit. This information is used in aggregate form in order to manage our website and improve its content.

Individually identifiable information: We collect individually identifiable information about you when you choose to share information about yourself—for example, when you make a donation, request information, or sign up to be an advocate. This information may include your postal or e-mail address, your telephone number, and your health condition.

Individually identifiable information is used to provide you with information or to deliver the service you have requested. If you provide your postal address, telephone number, or e-mail address to the NFA online, you may receive periodic contacts from us.

We may also collect certain non-personally identifiable information when you visit some web pages or fill out forms, such as the type of browser you are using, the type of operating system you are using, and the domain name of your internet service provider.

Cookies

We use a technology called a "cookie" to recognize you when you return to our site. Cookies are sent back only to the website that deposited them when a visitor returns to that site. Cookies can tell us how and when pages in a website are visited and by how many people. This technology does not collect personally identifiable information; the information collected is in an aggregate, non-identifiable form.

Links to Other Sites

Our site provides links to other websites where you can find out more about our sponsors or products. Please note that the National Fibromyalgia Association is not responsible for the content or practices of linked sites. We encourage you to review the privacy policy of each site you visit.

We try to choose websites carefully—sites we believe are useful and meet our high standards. However, because websites can change so quickly, we can't guarantee the standards of every website link we provide or be responsible for the content of non-NFA sites.

Children Online

Protecting the privacy of children is very important. For that reason, we adhere to the 1998 Children’s Online Privacy Protection Act (COPPA). (For more information, visit the Federal Trade Commission’s COPPA site at http://www.ftc.gov/bcp/conline/edcams/kidzprivacy/adults.htm.)

Privacy Policy Changes

If we decide to change our privacy policy, we will post those changes here. We encourage you to review our policy from time to time.

Questions or Concerns

For questions concerning our privacy policy, please email: jwinston@fmaware.org.

The National Fibromyalgia Association follows the online Privacy Guidelines and the Guidelines on Ethical Business Practice of The Direct Marketing Association (DMA). For more information on these guidelines, visit the DMA at http://the-dma.org/