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Resource Directory
Complementary Treatments
American Academy of Medical Acupuncture
4929 Wilshire Blvd., Ste. 428
Los Angeles, CA 90010
(323) 937-5514
www.medicalacupuncture.org/
American Association of Naturopathic Physicians
Naturopathy combines traditional medicine with other modalities, including homeopathy
4435 Wisconsin Ave. NW, Suite 403
Washington, DC 20016
(866) 538-2267
www.naturopathic.org/
American Association of Oriental Medicine
PO Box 162340
Sacramento, CA 95816
(866) 455-7999
www.aaom.org/
American Chiropractic Association
1701 Clarendon Blvd.
Arlington, VA 22209
(800) 986-4636
www.amerchiro.org/
American Holistic Medical Association
12101 Menaul Blvd., NE, Suite C
Albuquerque, NM 87112
(505) 292-7788
www.holisticmedicine.org/
American Massage Therapy Association
500 Davis St., Suite 900
Evanston, IL 60201-4695
Find a massage therapist: (888) 843-2682
www.amtamassage.org/
American Music Therapy Association
Music Therapy uses music to address physical, emotional, cognitive, and social needs
8455 Colesville Road, Suite 1000
Silver Spring, Maryland 20910
(301) 589-3300
http://musictherapy.org/
American Osteopathic Association
142 E. Ontario St.
Chicago, IL 60611
(800) 621-1773
www.osteopathic.org/
American Physical Therapy Association
1111 N. Fairfax St.
Alexandria, VA 22314-1488
(800) 999-APTA
www.apta.org/
Aquatic Physical Therapy Section of the American Physical Therapy Association
7853 East Arapahoe Court, Suite 2100
Centennial, Colorado 80112-1361
(303) 694-4728, ext. 60
www.aquaticpt.org/
Aquatic Resources Network
3500 Vicksburg Ln. North #250
Plymouth, MN 55447
(715) 248-7258
www.aquaticnet.com/
Association for Applied Psychophysiology and Biofeedback
Monitoring involuntary bodily functions to gain voluntary control over those, relieving stress and chronic pain and promoting relaxation
10200 W. 44th Ave. #304
Wheat Ridge, CO 80033
(800) 477-8892
www.aapb.org/
Feldenkrais Guild of North America
Individual or group instruction in ways of moving that increases ease and range of motion, coordination, and flexibility.
3611 SW Hood Ave., Suite 100
Portland, OR 97239
(866) 333-6248
www.aapb.org/
Hellerwork Combination of deep-tissue bodywork, movement education, and dialogue.
Hellerwork International
www.hellerwork.com/
National Center for Complementary and Alternative Medicine
9000 Rockville Pike Bethesda, Maryland 20892
(888) 644-6226
http://nccam.nih.gov/
National Association of Cognitive-Behavioral Therapists
CBT is a form of psychotherapy that identifies thought patterns that have negative effects, and teaches how to replace them with more positive thought patterns
PO Box 2195
Weirton, WV 26062
(800) 853-1135
www.nacbt.org/
American Occupational Therapy Association
Occupational therapists evaluate the impact fibromyalgia has on clients’ lives, and help clients lessen or overcome limitations at home or work
4720 Montgomery Lane
PO Box 31220
Bethesda, MD 20824-1220
(301) 652-2682
www.aota.org/
Reflexology Association of America
Reflexology stimulates specific points in the feet to affect corresponding organs or areas of the body.
PO Box 26744
Columbus, OH 43226-0744
(740) 657-1695
www.reflexology-usa.org/
Reiki Council
Reiki is the laying on of hands for healing purposes
799 Roosevelt Road
Building 4, Suite 001
Glen Ellyn, IL 60137
(630) 926-5891
www.reikicouncil.com/
Worldwide Aquatic Bodywork Association
P.O. Box 889
Middletown, CA 95461
(707) 928-5860
www.waba.edu/
Yoga Alliance
7801 Old Branch Avenue, Suite 400
Clinton, MD 20735
(877) 964-2255
www.yogaalliance.org/
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Disability and Work Issues
Allsup
Allsup is a leading nationwide provider of financial and healthcare related services to people with disabilities. Founded in 1984, Allsup has helped more than 100,000 people receive their entitled Social Security Disability Insurance and Medicare benefits. Allsup employs approximately 500 professionals who deliver services directly to consumers and their families or through their employers and long-term disability insurance carriers. Mention the National Fibromyalgia Association for priority assistance.
(800) 279-4357
http://www.allsup.com/
Disability Attorneys
The National Fibromyalgia Association is developing a list of disability attorneys who serve individuals affected by fibromyalgia. Click here to view or to add an attorney to the list.
“Ticket to Work and Self-Sufficiency”
A program run by the Social Security Administration to help people on disability get a job.
(866) 968-7842
www.socialsecurity.gov/work
Patient Advocate Foundation
Offers assistance to patients with issues connected to insurance, job retention, and debt or crisis matters.
700 Thimble Shoals Blvd, Suite 200
Newport News, VA 23606
(800) 532-5274
www.patientadvocate.org/
Disabled Online
www.disabledonline.com/
Disability Rights Education and Defense Fund, Inc
2212 Sixth St.
Berkeley, CA 94710
(510) 644-2555
www.dredf.org/
National Center on Physical Activity and Disability
(800) 900-8086
www.ncpad.org/
National Organization of Social Security Claimants’ Representatives
560 Sylvan Ave
Englewood Cliffs, NJ 07632
(800) 431-2804
www.nosscr.org/
Allsup - Social Security Disability Representation
Allsup is a leading nationwide provider of financial and healthcare related services to people with disabilities. Founded in 1984, Allsup has helped more than 100,000 people receive their entitled Social Security Disability Insurance and Medicare benefits. Allsup employs approximately 500 professionals who deliver services directly to consumers and their families or through their employers and long-term disability insurance carriers. For more information, visit http://www.allsup.com/.
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Elder Issues
Caregiver Guide to Senior Health Issues
http://www.care.com/senior-care-p1142-caregiver-guide-senior-health-issues.html
Eldercare Locator
(800) 677-1116
www.eldercare.gov/
United States ElderCare Referral Agency
1525 Mesa Verde Drive, Suite 210
Costa Mesa, California 92626
(800) 848-1008
www.askeldercare.com/
National Council on the Aging
(202) 479-1200
www.ncoa.org/
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Finances
Benefits Checkup
People over 55 and those on disability can find out what benefits they may be eligible for:
www.benefitscheckup.org/
Social Security
Provides Medicare and Medicaid information
(800) 772-1213
www.socialsecurity.gov/
Chronic Disease Fund
6900 North Vallas Parkway
Suite 200
Plano, TX 95024
(877) 968-7233
http://www.cdfund.org/
US Department of Housing and Urban Development
This department can connect you with your local Housing and Urban Development Office, which can lead you to a local housing authority that provides rental subsidies to low-income families.
451 7th Street S.W.
Washington, DC 20410
(202) 708-1112
www.hud.gov/
Government Benefits
www.govbenefits.gov/
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Insurance
Agency for Health Care Research and Quality
Offer a booklet with suggested questions to ask about health insurance coverage, which also contains worksheets to help compare plans
(800) 358-9295
http://www.ahrq.gov/
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Legal Issues
Kantor and Kantor, LLP
19839 Nordhoff St.
Northridge, CA 91324
(800) 446-7529
www.kantorlaw.net/
Legal Services Corporation
National service can provide referrals to local legal aid societies that provide legal services to low-income people
3333 K Street, NW, 3rd Floor
Washington, DC 20007-3522
(202) 295-1500
www.lsc.gov/
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Lifestyle Resources
National Council on Independent Living
Advocates for people with disabilities who strive to live independently
1710 Rhode Island Ave. NW
5th Floor
Washington, DC 20036
(877) 525-3400
www.ncil.org/
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Medications
Patient Advocate Foundation
A pharmaceutical co-payment assistance program for insured patients suffering with chronic pain.(866) 512-3861 www.copays.org/
Needy Meds
www.needymeds.com/
Partnership for Prescription Assistance
Search for prescription assistance programs by state
(888) 4PPA - NOW
www.pparx.org/
Lilly Cares
Program of Eli Lilly to help indigent patients without insurance. Requires no fees.
(800) 545-6962
http://www.ahrq.gov/
Together RX Access
Patient assistance program for those who do not have drug coverage. Amount of assistance is dependent on total household income.
(800) 444-4106
www.togetherrxaccess.com/
Astra Zeneca
Foundation Patient Assistance Program
Provides medications free to qualifying
(800) 424-3727
http://www.astrazeneca-us.com/
Bridges to Access
GlaxoSmithKline’s patient assistance program for non-oncology medicines provides GSK prescription medicines to eligible low-income patients without prescription drug benefits.
(866) PATIENT
http://bridgestoaccess.gsk.com/
The Medicine Program
(866) 694-3893
www.themedicineprogram.com/
Novartis
Patient assistance program
(800) 277-2254
RxHope
(877) 979-4673
www.rxhope.com/
Helping Patients
www.helpingpatients.org/
Lawson Healthcare Foundation
(888) 380-6337
www.a2zmedline.com/
Free Drug Card Program
http://www.freedrugcard.us/
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Medical Resources
Bureau of Primary Health Care
Website provides referrals to health care providers across the country
U.S. Department of Health and Human Services
Health Resources and Services Administration
Parklawn Building
5600 Fishers Lane
Rockville, Maryland 20857
(888) ASK-HRSA
http://ask.hrsa.gov/pc
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Healthfinder
Resource for finding government and nonprofit health and social service information on the Internet
US Department of Health and Human Services
P.O. Box 1133
Washington, DC 20013-1133
http://www.healthfinder.gov/
National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
1 AMS Circle
Bethesda, MD 20892-3675
(877) 22-NIAMS
www.niams.nih.gov/
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Mental Health & Counseling
National Institute of Mental Health
6001 Executive Boulevard
Room 8184, MSC 9663
Bethesda, MD 20892-9663
(866) 615-6464
www.nimh.nih.gov/
American Psychiatric Association
1000 Wilson Boulevard, Suite 1825
Arlington, VA 22209-3901
(703) 907-7300
www.psych.org/
American Psychological Association
Does not offer referrals
750 First Street, NE
Washington, DC 20002-4242
www.apa.org/
National Mental Health Association
2000 Beavregard St.
6th Floor
Alexandria, VA 22311
(800) 969-NMHA
www.nmha.org/
National Suicide Prevention Lifeline
1-800-273-TALK (8255)
http://www.suicidepreventionlifeline.org/
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Overlapping Conditions
American Council for Headache Education
19 Mantua Road
Mt. Royal, NJ 08061
(800) 255-ACHE
www.achenet.org/
American Autoimmune Related Diseases Association
22100 Gratiot Avenue
East Detroit, MI 48021
(586) 776-3900
www.aarda.org/
American Chronic Pain Association
PO Box 850
Rocklin, CA 95677
(800) 533-3231
www.theacpa.org/
American Pain Society
4700 West Lake Ave.
Glenview, IL 60025-1485
(847) 375-4715
www.ampainsoc.org/
Anxiety Disorders Assn. of America
8730 Georgia Avenue, Suite 600
Silver Spring, MD 20910
(240) 485-1001
www.adaa.org/
Association of Repetitive Motion Syndrome
PO Box 471973
Aurora, CO 80011
www.certifiedpst.com/arms/
Crohn's & Colitis Foundation of America
386 Park Avenue South
17th Floor
New York, NY 10016
(800) 932-2423
www.ccfa.org/
Chronic Fatigue
The CFIDS Association of America
PO Box 220398
Charlotte, NC 29222-0398
(704) 365-2343
www.cfids.org/
Depression and Bipolar Support Alliance
730 N. Franklin, Ste. 501
Chicago, IL 60610
(800) 826-3632
www.dbsalliance.org/
Depression and Related Affective Disorders Association
Meyer 3-181
8201 Greensboro Dr., Suite 300
McLean, VA 22102
(888) 288-1104
www.drada.org/
Ehlors-Danlos National Foundation
3200 Wilshire Blvd.
Suite 1601, South Tower
Los Angeles, California 90010
(213) 368 -3800
www.ednf.org/
Endometriosis Association
8585 N. 76th Place
Milwaukee, WI 53223
(414) 355-2200
www.endometriosisassn.org/
International Foundation for Functional Gastrointestinal Disorders
PO Box 170864
Milwaukee, WI 53217-8076
(888) 964-2001
www.iffgd.org/
International Pelvic Pain Society
(847) 517-7225
www.pelvicpain.org/
Interstitial Cystitis Association
110 N. Washington St., Ste. 340
Rockville, MD 20850
(800) HELP-ICA
www.ichelp.org/
Lupus Foundation of America
2000 L Street, N.W., Suite 710
Washington, DC 20036
(202) 349-1155
www.lupus.org/
Lupus International
17985 Sky Park Circle, Suite J
Irvine, CA 92614
(888) 532-2322
www.lupusinternational.com/
National Headache Foundation
820 N. Orleans, Ste. 217
Chicago, IL 60610
(888) NHF-5552
www.headaches.org/
National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017
(800) FIGHT-MS
www.nationalmssociety.org/
National Sleep Foundation
1522 K St., NW, Suite #500
Washington DC 20005
www.sleepfoundation.org/
National Vulvodynia Association
PO Box 4491
Silver Spring, MD 20914-4491
(301) 299-0775
www.nva.org/
American Reflex Sympathetic Dystrophy Hope Group
PO Box 875
Harrison, ME 04040
(207) 583-4589
www.rsdhope.org/
Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)
99 Cherry St.
Milford, CT 06460
(877) 662-7737
www.rsds.org/
Restless Legs Syndrome Foundation
819 Second St. SW
Rochester, MN 55902-2985
(877) INFO-RLS
www.rls.org/
Scleroderma Foundation
300 Rosewood Dr., Suite 101
Danvers, MA 01923
(800) 722-HOPE
www.scleroderma.org/
Sjogren’s Syndrome Foundation
8120 Woodmont Ave., Suite 530
Bethesda, MD 20814
(800) 475-6473
www.sjogrens.org/
Temporomandibular Joint Assn
PO Box 26770
Milwaukee, WI 53226-0770
(262) 432-0350
www.tmj.org/
The VP Foundation (vulvar pain)
Post Office Drawer 177
Graham, North Carolina 27253
(336) 226-0704
www.vpfoundation.org/
We Move
movement disorders support
www.wemove.org/
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Pain Management
American Academy of Pain Management
13947 Mono Way, Suite A
Sonora, CA 95370
(209) 533-9744
www.aapainmanage.org/
American Academy of Pain Medicine
www.painmed.org/
American Pain Foundation
201 N. Charles St., Suite 710
Baltimore, MD 21201
(888) 615-7246
www.painfoundation.org/
North American Spine Society
22 Calendar Court, 2nd Floor
LaGrange, IL 60525
(877) 774-6337
www.spine.org/
Pain Treatment Topics 202 Shermer Road Glenview, IL 60025
(847) 724-0862
http://www.pain-topics.org/
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Research and Clinical Trials
Center Watch
Clinical Trials Listing Service
22 Thomson Place, 47F1
Boston, MA 02210-1212
(617) 856-5900
www.centerwatch.com/
National Institutes of Health Clinical Trials
(301) 496-4000
www.clinicaltrials.gov/
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Service Resources
211
For information about health and human services available in your community
dial 211 or go to www.211.org/
Family Caregiver Alliance
180 Montgomery St., Suite 1100
San Francisco, CA 94104
(415) 434-3388
www.caregiver.org/
National Association of Social Workers
Find a social worker in your community
750 First St., NE
Washington, DC 20002-4241
(202) 408-8600
www.socialworkers.org/
National Family Caregivers Association
10400 Connecticut Ave., Suite #500
Kensington, MD 20895-3944
(800) 896-3650
www.thefamilycaregiver.org/
National Council on Disability
1331 F Street, NW, Suite 850
Washington, DC 20004
(202) 272-2004
www.ncd.gov/
National Pain Foundation
300 E. Hampden, Suite 100
Englewood, CO 80113
(866) 590-7246
www.nationalpainfoundation.org/
Well Spouse Association
A support network for spousal caregivers
63 West Main Street, Suite H
Freehold, NJ 07728
(800) 838-0879
www.wellspouse.org/
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