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Resource Directory

 

Complementary Treatments Medications
Disability and Work Issues Medical Resources
Elder Issues Mental Health and Counseling
Finances Overlapping Conditions
Insurance Pain Management
Legal Issues Research and Clinical Trials
Lifestyle Resources Service Resources

 

 

Complementary Treatments

 

American Academy of Medical Acupuncture

4929 Wilshire Blvd., Ste. 428

Los Angeles, CA 90010

(323) 937-5514

www.medicalacupuncture.org/

 

American Association of Naturopathic Physicians

Naturopathy combines traditional medicine with other modalities, including homeopathy

4435 Wisconsin Ave. NW, Suite 403

Washington, DC 20016

(866) 538-2267

www.naturopathic.org/

 

American Association of Oriental Medicine

PO Box 162340

 

Sacramento, CA 95816

(866) 455-7999

www.aaom.org/

 

American Chiropractic Association

1701 Clarendon Blvd.

Arlington, VA 22209

(800) 986-4636

www.amerchiro.org/

 

American Holistic Medical Association

12101 Menaul Blvd., NE, Suite C

Albuquerque, NM 87112

(505) 292-7788

www.holisticmedicine.org/

 

American Massage Therapy Association

500 Davis St., Suite 900

Evanston, IL 60201-4695

Find a massage therapist: (888) 843-2682

www.amtamassage.org/

 

American Music Therapy Association

Music Therapy uses music to address physical, emotional, cognitive, and social needs

8455 Colesville Road, Suite 1000

Silver Spring, Maryland 20910

(301) 589-3300

http://musictherapy.org/

 

American Osteopathic Association

142 E. Ontario St.

Chicago, IL 60611

(800) 621-1773

www.osteopathic.org/

 

American Physical Therapy Association

1111 N. Fairfax St.

Alexandria, VA 22314-1488

(800) 999-APTA

www.apta.org/

 

Aquatic Physical Therapy Section of the American Physical Therapy Association

7853 East Arapahoe Court, Suite 2100

Centennial, Colorado 80112-1361

(303) 694-4728, ext. 60

www.aquaticpt.org/

 

Aquatic Resources Network

3500 Vicksburg Ln. North #250

Plymouth, MN 55447

(715) 248-7258

www.aquaticnet.com/

 

Association for Applied Psychophysiology and Biofeedback

Monitoring involuntary bodily functions to gain voluntary control over those, relieving stress and chronic pain and promoting relaxation

10200 W. 44th Ave. #304

Wheat Ridge, CO 80033

(800) 477-8892

www.aapb.org/

 

Feldenkrais Guild of North America

Individual or group instruction in ways of moving that increases ease and range of motion, coordination, and flexibility.

3611 SW Hood Ave., Suite 100

Portland, OR 97239

(866) 333-6248

www.aapb.org/

 

Hellerwork Combination of deep-tissue bodywork, movement education, and dialogue.

Hellerwork International

www.hellerwork.com/

 

National Center for Complementary and Alternative Medicine

9000 Rockville Pike
Bethesda, Maryland 20892

(888) 644-6226

http://nccam.nih.gov/

  

National Association of Cognitive-Behavioral Therapists

CBT is a form of psychotherapy that identifies thought patterns that have negative effects, and teaches how to replace them with more positive thought patterns

PO Box 2195

Weirton, WV 26062

(800) 853-1135

www.nacbt.org/

 

American Occupational Therapy Association

Occupational therapists evaluate the impact fibromyalgia has on clients’ lives, and help clients lessen or overcome limitations at home or work

4720 Montgomery Lane

PO Box 31220

Bethesda, MD 20824-1220

(301) 652-2682

www.aota.org/

 

Reflexology Association of America

Reflexology stimulates specific points in the feet to affect corresponding organs or areas of the body.

PO Box 26744

Columbus, OH 43226-0744

(740) 657-1695

www.reflexology-usa.org/

 

Reiki Council

Reiki is the laying on of hands for healing purposes

799 Roosevelt Road

Building 4, Suite 001

Glen Ellyn, IL 60137

(630) 926-5891

www.reikicouncil.com/

 

Worldwide Aquatic Bodywork Association

P.O. Box 889

Middletown, CA 95461

(707) 928-5860

www.waba.edu/

 

Yoga Alliance

7801 Old Branch Avenue, Suite 400

Clinton, MD 20735

(877) 964-2255

www.yogaalliance.org/

 

 

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Disability and Work Issues

  

Allsup

Allsup is a leading nationwide provider of financial and healthcare related services to people with disabilities. Founded in 1984, Allsup has helped more than 100,000 people receive their entitled Social Security Disability Insurance and Medicare benefits. Allsup employs approximately 500 professionals who deliver services directly to consumers and their families or through their employers and long-term disability insurance carriers. Mention the National Fibromyalgia Association for priority assistance.

(800) 279-4357

http://www.allsup.com/

 

Disability Attorneys

The National Fibromyalgia Association is developing a list of disability attorneys who serve individuals affected by fibromyalgia. Click here to view or to add an attorney to the list.

  

“Ticket to Work and Self-Sufficiency”

A program run by the Social Security Administration to help people on disability get a job.

(866) 968-7842

www.socialsecurity.gov/work

 

Patient Advocate Foundation

Offers assistance to patients with issues connected to insurance, job retention, and debt or crisis matters.

700 Thimble Shoals Blvd, Suite 200

Newport News, VA 23606

(800) 532-5274

www.patientadvocate.org/

 

Disabled Online

www.disabledonline.com/

 

Disability Rights Education and Defense Fund, Inc

2212 Sixth St.

Berkeley, CA 94710

(510) 644-2555

www.dredf.org/

 

National Center on Physical Activity and Disability

(800) 900-8086

www.ncpad.org/

 

National Organization of Social Security Claimants’ Representatives

560 Sylvan Ave

Englewood Cliffs, NJ 07632

(800) 431-2804

www.nosscr.org/

 

Allsup - Social Security Disability Representation

Allsup is a leading nationwide provider of financial and healthcare related services to people with disabilities. Founded in 1984, Allsup has helped more than 100,000 people receive their entitled Social Security Disability Insurance and Medicare benefits. Allsup employs approximately 500 professionals who deliver services directly to consumers and their families or through their employers and long-term disability insurance carriers. For more information, visit http://www.allsup.com/.

 

 

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Elder Issues

 

Caregiver Guide to Senior Health Issues

http://www.care.com/senior-care-p1142-caregiver-guide-senior-health-issues.html

  

Eldercare Locator

(800) 677-1116

www.eldercare.gov/

 

United States ElderCare Referral Agency

1525 Mesa Verde Drive, Suite 210

Costa Mesa, California 92626

(800) 848-1008

www.askeldercare.com/

 

National Council on the Aging

(202) 479-1200

www.ncoa.org/

 

 

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Finances

 

Benefits Checkup

People over 55 and those on disability can find out what benefits they may be eligible for:

www.benefitscheckup.org/

 

Social Security

Provides Medicare and Medicaid information

(800) 772-1213

www.socialsecurity.gov/

 

Chronic Disease Fund

6900 North Vallas Parkway

Suite 200

Plano, TX 95024

(877) 968-7233

http://www.cdfund.org/

 

US Department of Housing and Urban Development

This department can connect you with your local Housing and Urban Development Office, which can lead you to a local housing authority that provides rental subsidies to low-income families.

451 7th Street S.W.

Washington, DC 20410

(202) 708-1112

www.hud.gov/

 

Government Benefits

www.govbenefits.gov/

 

 

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Insurance

 

Agency for Health Care Research and Quality

Offer a booklet with suggested questions to ask about health insurance coverage, which also contains worksheets to help compare plans

(800) 358-9295

http://www.ahrq.gov/

 

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Legal Issues

 

Kantor and Kantor, LLP

 

19839 Nordhoff St.

Northridge, CA 91324

(800) 446-7529

www.kantorlaw.net/

 

Legal Services Corporation

National service can provide referrals to local legal aid societies that provide legal services to low-income people

3333 K Street, NW, 3rd Floor

Washington, DC 20007-3522

(202) 295-1500

www.lsc.gov/

 

 

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Lifestyle Resources

 

National Council on Independent Living

Advocates for people with disabilities who strive to live independently

1710 Rhode Island Ave. NW

5th Floor

Washington, DC 20036

(877) 525-3400

www.ncil.org/

 

 

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Medications

 

Patient Advocate Foundation

A pharmaceutical co-payment assistance program for insured patients suffering with chronic pain.(866) 512-3861
www.copays.org/

  

Needy Meds

www.needymeds.com/

 

Partnership for Prescription Assistance

Search for prescription assistance programs by state

(888) 4PPA - NOW

www.pparx.org/

 

Lilly Cares

Program of Eli Lilly to help indigent patients without insurance. Requires no fees.

(800) 545-6962

http://www.ahrq.gov/

 

Together RX Access

Patient assistance program for those who do not have drug coverage. Amount of assistance is dependent on total household income.

(800) 444-4106

www.togetherrxaccess.com/

 

Astra Zeneca

Foundation Patient Assistance Program

Provides medications free to qualifying

(800) 424-3727

http://www.astrazeneca-us.com/

 

Bridges to Access

GlaxoSmithKline’s patient assistance program for non-oncology medicines provides GSK prescription medicines to eligible low-income patients without prescription drug benefits.

(866) PATIENT

http://bridgestoaccess.gsk.com/

 

The Medicine Program

(866) 694-3893

www.themedicineprogram.com/

 

Novartis

Patient assistance program

(800) 277-2254

 

RxHope

(877) 979-4673

www.rxhope.com/

 

Helping Patients

www.helpingpatients.org/

 

Lawson Healthcare Foundation

(888) 380-6337

www.a2zmedline.com/

 

Free Drug Card Program

http://www.freedrugcard.us/

 

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Medical Resources

 

Bureau of Primary Health Care

Website provides referrals to health care providers across the country

U.S. Department of Health and Human Services

Health Resources and Services Administration

Parklawn Building

5600 Fishers Lane

Rockville, Maryland 20857

(888) ASK-HRSA

http://ask.hrsa.gov/pc

 

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Healthfinder

 

Resource for finding government and nonprofit health and social service information on the Internet

US Department of Health and Human Services

P.O. Box 1133

Washington, DC 20013-1133

http://www.healthfinder.gov/

 

National Institute of Arthritis and Musculoskeletal and Skin Diseases

Information Clearinghouse

1 AMS Circle

Bethesda, MD 20892-3675

(877) 22-NIAMS

www.niams.nih.gov/

 

 

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Mental Health & Counseling

 

National Institute of Mental Health

6001 Executive Boulevard

Room 8184, MSC 9663

Bethesda, MD 20892-9663

(866) 615-6464

www.nimh.nih.gov/

 

American Psychiatric Association

1000 Wilson Boulevard, Suite 1825

Arlington, VA 22209-3901

(703) 907-7300

www.psych.org/

 

American Psychological Association

Does not offer referrals

750 First Street, NE

Washington, DC 20002-4242

www.apa.org/

 

National Mental Health Association

2000 Beavregard St.

6th Floor

Alexandria, VA 22311

(800) 969-NMHA

www.nmha.org/

 

National Suicide Prevention Lifeline

1-800-273-TALK (8255)

http://www.suicidepreventionlifeline.org/

 

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Overlapping Conditions

 

American Council for Headache Education

19 Mantua Road

Mt. Royal, NJ 08061

(800) 255-ACHE

www.achenet.org/

 

American Autoimmune Related Diseases Association

22100 Gratiot Avenue

East Detroit, MI 48021

(586) 776-3900

www.aarda.org/

 

American Chronic Pain Association

PO Box 850

Rocklin, CA 95677

(800) 533-3231

www.theacpa.org/

 

American Pain Society

4700 West Lake Ave.

Glenview, IL 60025-1485

(847) 375-4715

www.ampainsoc.org/

 

Anxiety Disorders Assn. of America

8730 Georgia Avenue, Suite 600

Silver Spring, MD 20910

(240) 485-1001

www.adaa.org/

 

Association of Repetitive Motion Syndrome

PO Box 471973

Aurora, CO 80011

www.certifiedpst.com/arms/

 

Crohn's & Colitis Foundation of America

386 Park Avenue South

17th Floor

New York, NY 10016

(800) 932-2423

www.ccfa.org/

 

Chronic Fatigue

The CFIDS Association of America

PO Box 220398

Charlotte, NC 29222-0398

(704) 365-2343

www.cfids.org/

 

Depression and Bipolar Support Alliance

730 N. Franklin, Ste. 501

Chicago, IL 60610

(800) 826-3632

www.dbsalliance.org/

 

Depression and Related Affective Disorders Association

Meyer 3-181

8201 Greensboro Dr., Suite 300

McLean, VA 22102

(888) 288-1104

www.drada.org/

 

Ehlors-Danlos National Foundation

3200 Wilshire Blvd.

Suite 1601, South Tower

Los Angeles, California 90010

(213) 368 -3800

www.ednf.org/

 

Endometriosis Association

8585 N. 76th Place

Milwaukee, WI 53223

(414) 355-2200

www.endometriosisassn.org/

 

International Foundation for Functional Gastrointestinal Disorders

PO Box 170864

Milwaukee, WI 53217-8076

(888) 964-2001

www.iffgd.org/

 

International Pelvic Pain Society

(847) 517-7225

www.pelvicpain.org/

 

Interstitial Cystitis Association

110 N. Washington St., Ste. 340

Rockville, MD 20850

(800) HELP-ICA

www.ichelp.org/

 

Lupus Foundation of America

2000 L Street, N.W., Suite 710

Washington, DC 20036

(202) 349-1155

www.lupus.org/

 

Lupus International

17985 Sky Park Circle, Suite J

Irvine, CA 92614

(888) 532-2322

www.lupusinternational.com/

 

National Headache Foundation

820 N. Orleans, Ste. 217

Chicago, IL 60610

(888) NHF-5552

www.headaches.org/

 

National Multiple Sclerosis Society

733 Third Avenue

New York, NY 10017

(800) FIGHT-MS

www.nationalmssociety.org/

 

National Sleep Foundation

1522 K St., NW, Suite #500

Washington DC 20005

www.sleepfoundation.org/

 

National Vulvodynia Association

PO Box 4491

Silver Spring, MD 20914-4491

(301) 299-0775

www.nva.org/

 

American Reflex Sympathetic Dystrophy Hope Group

PO Box 875

Harrison, ME 04040

(207) 583-4589

www.rsdhope.org/

 

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

99 Cherry St.

Milford, CT 06460

(877) 662-7737

www.rsds.org/

 

Restless Legs Syndrome Foundation

819 Second St. SW

Rochester, MN 55902-2985

(877) INFO-RLS

www.rls.org/

 

Scleroderma Foundation

300 Rosewood Dr., Suite 101

Danvers, MA 01923

(800) 722-HOPE

www.scleroderma.org/

 

Sjogren’s Syndrome Foundation

8120 Woodmont Ave., Suite 530

Bethesda, MD 20814

(800) 475-6473

www.sjogrens.org/

 

Temporomandibular Joint Assn

PO Box 26770

Milwaukee, WI 53226-0770

(262) 432-0350

www.tmj.org/

 

The VP Foundation (vulvar pain)

Post Office Drawer 177

Graham, North Carolina 27253

(336) 226-0704

www.vpfoundation.org/

 

We Move

movement disorders support

 www.wemove.org/

 

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Pain Management

 

American Academy of Pain Management

13947 Mono Way, Suite A

Sonora, CA 95370

(209) 533-9744

www.aapainmanage.org/

 

American Academy of Pain Medicine

www.painmed.org/

 

American Pain Foundation

201 N. Charles St., Suite 710

Baltimore, MD 21201

(888) 615-7246

www.painfoundation.org/

 

North American Spine Society

22 Calendar Court, 2nd Floor

LaGrange, IL 60525

(877) 774-6337

www.spine.org/

 

Pain Treatment Topics
202 Shermer Road
Glenview, IL 60025

(847) 724-0862

http://www.pain-topics.org/

 

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Research and Clinical Trials

 

Center Watch

Clinical Trials Listing Service

22 Thomson Place, 47F1

Boston, MA 02210-1212

(617) 856-5900

www.centerwatch.com/

 

National Institutes of Health Clinical Trials

(301) 496-4000

www.clinicaltrials.gov/

 

 

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Service Resources

 

211

For information about health and human services available in your community

dial 211 or go to www.211.org/

 

Family Caregiver Alliance

180 Montgomery St., Suite 1100

San Francisco, CA 94104

(415) 434-3388

www.caregiver.org/

 

National Association of Social Workers

Find a social worker in your community

750 First St., NE

Washington, DC 20002-4241

(202) 408-8600

www.socialworkers.org/

 

National Family Caregivers Association

10400 Connecticut Ave., Suite #500

Kensington, MD 20895-3944

(800) 896-3650

www.thefamilycaregiver.org/

 

National Council on Disability

1331 F Street, NW, Suite 850

Washington, DC 20004

(202) 272-2004

www.ncd.gov/

 

National Pain Foundation

300 E. Hampden, Suite 100

Englewood, CO 80113

(866) 590-7246

www.nationalpainfoundation.org/

 

Well Spouse Association

A support network for spousal caregivers

63 West Main Street, Suite H

Freehold, NJ 07728

(800) 838-0879

www.wellspouse.org/

 

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